10.11.17

As I sit here and type this, Doris Day’s Que Sera, Sera is replaying in my head over and over. I distinctly remember my mom singing that song to me (as I do for Nora & Peter) when I was a little girl. It’s always stuck with me and I feel like it’s been my anthem for life over the past few years.

Which brings me to the point of this post. It’s hard to believe that 10.11.12 was FIVE years ago. Que sera, sera. What will be, will be.

Thankfully, I’m happy to report that my latest test results indicate that I’m still NED (no evidence of disease). Wahoo! Happy 5-year cancerversary to me!

As most of you know, making it 5 years without a recurrence or distant metastasis for a triple negative-er is a really big deal. At this point (assuming the scientific literature out there is still accurate) my rate of recurrence drops significantly. Metastasis could still rear it’s ugly head one day, but I’ve learned to embrace the Que, Sera, Sera part of life!

Does this mean that I’ll rest on my laurels and go back to “normal” life? No my friends, there is no such thing as “normal” life anymore – just the new normal – which includes exercise (ugh.), self-care (read: switching to non-toxic make-up, personal care products, laundry detergent, household cleaning items, and trying to eat “clean” while balancing ALL of that against just living my life and enjoying myself!) and continued check ups with Garrett every 3 to 4 months.

But seriously, as shitty as things have been, they’ve been equally as amazing. I wouldn’t trade a thing about the past 5 years because I’ve grown so much as a person. Of course, I wouldn’t wish cancer on anybody, but for me, it was (and is) a profound experience. I’ve met so many beautiful souls along the way. Without my community, I wouldn’t be where I am today. So I thank all of you who have been there for me and my family — holding space for us and holding us in your hearts and prayers when we needed it most. I hope to return the favor as many times over as I can.

For now though, I’ll happily continue cruisin’ along in this lane. It’s not a bad lane to be in…

xoxo,
Andrea

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Photo Credit: Piece of Heart Photography

 

This one snuck up on me

Yesterday was my 4-year cancerversary. It snuck up on me for sure – but it’s not like I forgot about it. It’s always in the back of my mind. Happily though, Paul totally forgot about it. Which I’m fine with. It’s not a ‘versary I like to dwell on too much.

I spent a cozy, delicious day snuggled at home with Peter. I had plans to run an errand or two – but ended up nesting at home with my new little bug instead. It was heaven. Until the witching hour that is. Around dinnertime, literally, everybody in our house was grousing. Peter was crying for a feed, Nora was melting down after a long day at daycare, Maisey was plead-barking at the back door to be let out for a potty – and Paul and I were divided in separate rooms tending to the tiny humans. It was perfectly imperfect. I felt like crying, but chuckled in my head instead. I suppose these are life’s little moments!

Some updates for you on the cancer front:

Earlier this summer, I was accepted into a clinical trial for TNBC survivors. The trial is by Cynvenio and they believe that they can perform a biopsy on our blood to detect whether we’re having a recurrence up to 8 months before current tests could catch it. The trial is specifically for triple negative folks like myself. I don’t have to do a whole heck of a lot except give my blood 4 times a year. I thought I’d get kicked out of the trial b/c I missed the second draw due to bedrest with Peter. But they were cool about it and let me miss one draw and stay in the study.

One of these days when I have some time I’ll post more details about the trial itself. I’m sure you can google it if you’re really curious. Who knows if it actually can detect what it says it can — but that’s the point of the trial, right? I’m happy to participate and do my small part to help advance science.

I’ll leave you with some scrumptious pics of the kids and a hilarious video of Nora and Peter, enjoy!

Hello, I Have Cancer….

I wrote this two years ago and just came across it in my draft posts. I added a little bit at the end to bring it up to date. Enjoy:

So I was watching the Tig Notaro Netflix documentary and I decided it was high time for me to write my own reflective story. So here goes:

Hello, I’m infertile.  I thought the very worst thing in my life was that I couldn’t get pregnant.  For years my husband and I tried. We tried the old fashioned way. We tried the least invasive way. We tried the middle of the road invasive way We tried the most invasive way, multiple times over. Yet no pregnancy and no baby.  I wept and I wept every single month that we failed to get pregnant. And I say “we” loosely.  When you struggle with infertility, it quickly becomes an “I” game, not a “we” game. I had to do all the shots, I had to take all the hormones I had to check my underwear everys single time I went to the bathroom praying that my period wouldn’t show her nasty face. Sure, my husband was also infertile in a way — but he wasn’t physically going through anything. It was all on my shoulders and I was failing, miserably.

And after three years of infertility treatments, including 10 IUI’s with and without injectables and 4 IVF rounds including a few frozen embryo transfers, we still were without a child.

It was the worst kind of hell a person could be asked to live through.  I was working full-time at a very demanding start-up company.  I was juggling my personal hell with my professional goals.  It was horrible. I was miserable. I thought it was the very worst thing that could ever happen to me in my whole entire life. And then I was diagnosed with cancer.

If I could go back and whisper in my own ear, here’s what I would tell myself.

Andrea, hold tight to Paul even though you’re mad that he doesn’t feel “in the mood” and your ovulation window is closing. Hold tight to him because you can’t have a baby anyway. Hold tight to him and love him purely. You are about to find out that having a baby the old fashioned way isn’t an option for you. So hold on to this connection as long as you can. Nobody really talks about it, but having sex “on demand” is horrid — it can break a couple in half quickly. So hold tight to this loving man who appreciates you and your body, even though it hasn’t yielded a baby.

Andrea, you’re now 8 months into your fertility journey. Keep your head held high. You’re doing the right thing. It sucks to have to give yourself shots and that you cringe every time a friend posts her ultrasound to Facebook announcing her pregancy. Remember, she doesn’t know what you’re struggling with infertility because you’re intent on keeping it a secret from the world.

Andrea, why are you still keeping this a secret? It’s now been 3 years since you started this journey. your medical expenses have topped out over $100,000 and you’ve given yourself over 1,000 shots to the belly. Don’t you think it’s time to share this complete fucking hell with somebody?

Andrea, don’t you feel so much better now that you’ve told your family what you’ve been struggling with. Honestly, this has been the WORST thing imaginable. But it’s been really nice to have their support. You feel a new sense of energy and sticktuitivness, Ready to conquer the next hurdle.

Then you feel the lump. You talk to Paul about it but try to brush it off. You talk to your fertility nurse about it and try to brush it off.  Then the lump persists. You can’t ignore it. You go to the doctor and she fells it and orders some follow-up tests. Still, in your mind, you brush it off. What.could.be.worse.than.3.years.of.infertility?

Breast cancer.  It was laughable to me when it happened. Fucking hilarious. Seriously, for real?

After all that’d I’d been through, I got cancer. Wow.just.wow.

Andrea, just hold on a little while longer. 2 more years. You can do it. You can handle having your breasts amputated. You can handle surgical recovery. You can handle chemotherapy. You can handle your body being reduced to a lump of shit with no muscle definition or endurance. You can handle testing your marriage, yet again. You can handle it all.

Andrea, you can handle it all — but you will have your moments. You will have those times when you dont want to be the superhero. When you don’t want to smile through the tears. When you dont feel like asking another person how THEY feel. When you want to be selfish and cry. and weep. and weep. and weep. and wallow.

Andrea, your beloved dog will die unexpectedly just as you are feeling like yourself after chemo is finally done. This will knock you an on your ass. You will question everything that you thought you understood in this world. You will become angry. More angry than when you found out you had cancer, You will be sad. So sad. Sadder than when you couldn’t have a baby month after month after month.

You truly thought you’d been dealt the worst of the worst. First the infertilty, then the cancer, then your fucking dog died. What next? How much lower can you go?

Andrea, you will look up through your tear-drenched eyes and see the love that your husband has for you. You will realize he is all you need in this world. Baby, no baby. Dog, No dog, Cancer, no cancer. He is your salvation. Stop taking him for granted. He is incredible. Look no further. He’s been at your side the whole time. Quietly and not so quietly rooting for you. Whether you know it or not. He’s been your biggest fan.

Andrea, you’ll get the type of cancer that’s incerdibly aggressive — BUT it’s the kind with no aftercare for 10 years. You can hop yourself up full of hormoes and still carry a pregnancy.

Andrea, you will become pregnant and enjoy every single second of it, including the birth.

Andrea, all of your wishes and dreams WILL come true and you will be happier than you could’ve ever imganined. You will want to bottle the emotions because they’re like crack. You could make a fortune selling this feeling to other people.

You are one lucky son of a gun. What a long strange trip it’s been.

Post script – you get pregnant for a second time and almost lose the baby at 22 weeks. Life seems likes it’s at another all time low.

Andrea, hang in there. After an emergency surgery and nearly 8 weeks of hospital bedrest, you’ll get to go home and serve another 7 weeks of bedrest. But at the end of the day, you’ll get a second baby who is perfect.

In the end, you’ll end up with a daughter and a son. They are perfect in every way.

Andrea, your marriage is still intact and strong. Hopefully the shit show the past 7 years will become a distant memory very soon…..

xoxo.
Me

Reminiscing

Aloha!

One of my favorite things to do is to reminisce.  I especially love to start reminiscing an event before it’s even over. True to form, below is a video from our Hawaiian vacation — that we are still on. lol

And, yes, the double rainbow is real — we lucked out big time!

I’m three months old today!

  

Dead Head

Went deep with the Grateful Dead at Nora’s 1pm feed.

It can’t always be Joshua Bell up in our house. Gotta teach this girl ALL the classics.

It reminded me of running around Eagle Heights with Nicole and Sarah. I regaled Nora with stories of mommy’s childhood hijinx!

Jerry’s voice lulled her into an almost comatosed state — she just pulled and pulled on her bottle until she was milk drunk. I was a wee bit concerned the feed might end in projectile vomiting. Ya know — much like a Dead concert — it can go either way! Thankfully she was super mellow and just jammed to the music on her play mat.

She doesn’t come with an instruction booklet, so I just do what feels right. Today, this felt right and, miraculously, it worked. She’s having a good day!

#parenthood

   

 

Tiny Moments

Today we listened to Joshua Bell’s ‘Romance of the Violin’ while you ate.

We both wept.

Tears streamed down my face because you’re finally in my life. I used to listen to JB during cancer and dream of you. Now you’re in my arms and I’m overcome with love. His music takes me back to a sad time. I’m so happy you’re here to supplant those memories.

I’m so emo over you!

I’d like to think you cried because you thought the music was beautiful and haunting. In fact, you pulled at your bottle in time with the music, dozing off during particularily calm parts and coming back to life for a good sucking sesh during the energetic bits.

But in reality, you probably cried due to gas and reflux!

 

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