Turn, Turn, Turn

Today is Janet’s birthday. I ‘ll celebrate her by carrying on her memory and life’s mission. She wanted more, much more, for folks living and dying of stage 4 metastatic breast cancer.

Just last week Paul and I were on a kinder open house tour – and I saw a lady with a beanie on. Clearly no hair underneath (this wasn’t for fashion or style – this was chemo). I made a point to join her tour group so that I could talk with her and let her know I’m in her tribe. I was ready to flash my freshly revised port scar and all! As I approached her from behind, she turned around and faced me, I was taken aback, it was my friend Julie (was it a badge of honor that I knew the cancer lady on the school tour? Ugh, I dunno, maybe?…probably not, I’ve lost all sense of perspective at this point).

Julie is living with metastatic disease. She’s my age (ish) and has a daughter Nora’s age. Her life is very different from mine, yet exactly the same. She’s a mom. She’s going on kindergarten tours. She’s trying to figure out the lottery system for her child — same as me. BUT, she has to do all this planning wondering how long she’ll be on this earth – will she be here to watch her child go to kinder? 1st? 2nd? 3rd? You get the point. I want to scream, kick and shout for her.

So then, we continue on with the tour. Paul and I trying to picture our kid(s) at the school, marveling at the dance studio and art room – but I couldn’t stop putting myself in Julie’s shoes. The pit in her stomach as she walked the halls wondering how long she’d get to see her child grow and learn.

It’s GD heart wrenching. I hate it. I hated stealing glances at her on the tour knowing exactly what she was thinking. I wanted to scream like both of my toddlers do every.single.day. THIS IS NOT FAIR. ITS NOT FAIR. SHE’S BEING CHEATED. HER FAMILY IS BEING ROBBED.

All I can say is stage 4 needs more. It’s not just a cute hashtag. Please please please do what you can. No matter how little, because it matters. If you’re able, donate HERE.

To everything (turn, turn, turn)
There is a season (turn, turn, turn)
And a time to every purpose, under heaven
A time to be born, a time to die
A time to plant, a time to reap
A time to kill, a time to heal
A time to laugh, a time to weep
To everything (turn, turn, turn)
There is a season (turn, turn, turn)
And a time to every purpose, under heaven
A time to build up, a time to break down
A time to dance, a time to mourn
A time to cast away stones, a time to gather stones together
To everything (turn, turn, turn)
There is a season (turn, turn, turn)
And a time to every purpose, under heaven
A time of love, a time of hate
A time of war, a time of peace
A time you may embrace, a time to refrain from embracing
To everything (turn, turn, turn)
There is a season (turn, turn, turn)
And a time to every purpose, under heaven
A time to gain, a time to lose
A time to rend, a time to sew
A time for love, a time for hate
A time for peace, I swear it’s not too late

 

10.11.18 – 6 years later.

6 years later. It seems long, but not distant. Does that make sense? The pain memory has faded, but the muscle memory holds it all. Strange, isn’t it?

6 years later and I find myself in another conference room. On this particular morning, I don’t receive a call from Dr. Huo (thank God!), instead, this conference room is where I busily work away at my new job as a People Partner at a cool company, working with, and supporting, really smart and motivated people. I feel really happy on this particular 10.11.

4 weeks ago I started a new chapter and went back to work. The adjustment hasn’t been that bad. Paul’s been a great support and has taken on a lot more kiddo duty so that I can ramp up. I really love working and I think I’m doing a good job keeping it all in perspective and maintaining balance in my life between the kids, the hubs and self care time. That said, I’m only 4 weeks in, so the train has plenty of time to come off the tracks!

In all seriousness though, things are good, really good. Life seems to have reset itself. This will never be something that I forget, that I don’t think about often. In fact, I continue to take cancer booty calls from PAMF on a regular basis. But, it’s sort of become woven into my fabric. My close friend circle is filled with so many BAYS pals. The lines are all blurred and I love that. I love it. It’s who I am now, and I kinda dig the new me.

This is what 6 years later looks like for me – a full head of hair – lots of chaos – never a perfect family photo – and most importantly, crazy fun with Paul, the kiddos and Maisey, Maise…..

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STATS:
6 years
1 amazing hubs
1 amazing Maisey dog (whose namesake is now pretty well known – Maisey Hirono)
2 beautiful, amazing kiddos
1 amazing new job!…..

 

10.11.17

As I sit here and type this, Doris Day’s Que Sera, Sera is replaying in my head over and over. I distinctly remember my mom singing that song to me (as I do for Nora & Peter) when I was a little girl. It’s always stuck with me and I feel like it’s been my anthem for life over the past few years.

Which brings me to the point of this post. It’s hard to believe that 10.11.12 was FIVE years ago. Que sera, sera. What will be, will be.

Thankfully, I’m happy to report that my latest test results indicate that I’m still NED (no evidence of disease). Wahoo! Happy 5-year cancerversary to me!

As most of you know, making it 5 years without a recurrence or distant metastasis for a triple negative-er is a really big deal. At this point (assuming the scientific literature out there is still accurate) my rate of recurrence drops significantly. Metastasis could still rear it’s ugly head one day, but I’ve learned to embrace the Que, Sera, Sera part of life!

Does this mean that I’ll rest on my laurels and go back to “normal” life? No my friends, there is no such thing as “normal” life anymore – just the new normal – which includes exercise (ugh.), self-care (read: switching to non-toxic make-up, personal care products, laundry detergent, household cleaning items, and trying to eat “clean” while balancing ALL of that against just living my life and enjoying myself!) and continued check ups with Garrett every 3 to 4 months.

But seriously, as shitty as things have been, they’ve been equally as amazing. I wouldn’t trade a thing about the past 5 years because I’ve grown so much as a person. Of course, I wouldn’t wish cancer on anybody, but for me, it was (and is) a profound experience. I’ve met so many beautiful souls along the way. Without my community, I wouldn’t be where I am today. So I thank all of you who have been there for me and my family — holding space for us and holding us in your hearts and prayers when we needed it most. I hope to return the favor as many times over as I can.

For now though, I’ll happily continue cruisin’ along in this lane. It’s not a bad lane to be in…

xoxo,
Andrea

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Photo Credit: Piece of Heart Photography

 

Peter’s First Trip Around the Sun

A few weeks ago we celebrated Peter’s 1st birthday. It’s incredible to me how quickly this year has flown by. Peter is growing like a weed. He weighs just over 21 pounds (for reference his nearly 3 year old sister weighs 24 pounds! – but she’s a peanut!) and is thriving.

He’s super chill – enduring a daily onslaught of over enthusiastic hugs, kisses and squeezes from Nora. She goes ape sh*t every single time she sees him. Poor guy. I keep telling Nora that he’ll outweigh her before long and he’ll exact his revenge 🙂 But when does reasoning with a toddler ever work?! So she’ll have to learn that lesson the hard way…

Milestone-wise, Peter is a different kid than Nora, and that’s fine. He’s taking his time to find his words and motivate himself to walk. Our pediatrician assures us he’s just perfect and a “boy”. I guess that translates to a bit slower to hit milestones?

Overall, my boy is so happy and smiley. He can keep a giggly game of peek-a-boo going for 15 minutes. And I’m always happy to oblige. There’s no sound on the planet as wonderful as a baby belly laugh.

Below are pics from Peter’s special day. Thank you to all of our friends and family who came out. Especially to Dr. Katz and the Conklyn’s. We felt very honored and humbled to have Dr. Katz celebrate the child whose life he saved. If it weren’t for him, we would not have Peter in our family. I thought that’s unbearable to me.

And to the Conklyn’s – who knew last summer as Katie and I lay in hospital rooms next door to one another going through the same medical experience – what a life long bond would be formed. We can’t wait to continue to watch your miracle boys grow up!

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Day 24 – 25 Weeks 5 days

Hey everyone,

Just wanted to do a quick update for you. We were supposed to leave on our babymoon tomorrow – oh well – guess we’ll take a raincheck on that one!

I’m on Day 24 of my incarceration, errr, I mean, hospital bed rest stint. In all seriousness, I do, at times, feel like a prisoner, though its arguable that prisoners have more freedoms than I at the moment 🙂 But, when I start to feel that way, I just remind myself that this is all for my son. And, of course, he’s worth it.

Everything with my body, the cerclage and baby are holding stable. I do fetal monitoring and contraction monitoring 3 times a day. So far I’m not really having any contractions to speak of. The few I have are not painful, so are likely just Braxton Hicks – which are normal at this point in a pregnancy.  Baby boy is super active and recently moved from breech to head down (though he can easily move back to breech since it’s still really early). I get my amniotic fluid levels checked twice a week, and so far so good on that front. I get an ultrasound to check the cerclage every two weeks — my next one in July 13th.

My doctors are becoming cautiously optimistic.  While we still talk in terms of days, not weeks. They each (my OB and my high risk surgeon) have said they’re hopeful I get to 28 weeks and beyond.  My surgeon went so far as to say that he’ll be going on vacation in late August for 2 weeks and ‘I’m not to have the baby while he’s gone’. If I behave, he said he’d remove the cerclage on September 15th. That, ladies and gentleman, is TEN WEEKS from today. Holy goddamn hell. Thats a long way away. But my due date is October 15th, so to hold this guy in until September 15th would be awesome!

So that’s the update for you. Here are a few of my upcoming mini-milestones (in case you wondered about the inner workings of my brain):

  • Make it to my in-room massage on 7/7 (that’s today, yay, I made it!)
  • Make it to the RHONJ premiere on 7/10
  • Make it to the Flipping Out premiere on 7/13
  • Book another in-room massage for next week and make it to that
  • Make it until week 27 (7/16) when my OB gets back from vacation
  • Make it to my 41st birthday (7/17) b/c mama’s hoping for a damn good present this year 🙂

So those are the goals for the next little while — you can see I’m trying to keep it light and simple! Stay tuned for a post on tips n’ tricks to surviving a prolonged hospital stay. Figure I might as well pass along some things I’ve learned along the way…

xoxo

 

 

 

 

Kauai 2016

Summer has officially begun in the Sieminski household! Last month we were in Kauai with my cousins for 10 glorious days. While vacationing with a toddler is exhausting as hell, we still had a fantastic time 🙂

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1st Birthday Party

Dearest Nora,

You’ve brought me pure joy this year. You’re beautiful, smart, happy, curious, expressive and kind. You’re the most active kid I’ve ever met! I love that you keep me on my toes. I can’t wait to see what the next year brings for you. Below are pics and video from your birthday party. I love you so much my darling!

Photo credit goes to our amazing babysitter Ana (check out all of her work at www.anabrazaityte.com)